Patient Experience Work Programme

Only by listening to the views and experiences of those who lives are or have been affected by cancer will we be able to realise our ambition of wrapping cancer care, treatment and support around them as individuals.

The Patient Experience work programme is looking at new and innovative ways to ensure that patient experience is used to drive future improvements and is considered to be just as important as clinical care and outcomes.

Click here to find out what some of our patients have to say about the importance of learning from patient experience.

What's happening where you live?

Click below for more information about what's happening to improve patient experience in your own local place.

Bradford Teaching Hospitals NHS Trust/Cancer Support Yorkshire

Involving Patients

The involvement of patients is fundamental to the delivery of all aspects of the Cancer Alliance work programme. Each of our project groups has been asked to produce a communications and engagement plan which supports their specific business objectives and aligns with the overarching Alliance communications and engagement strategy.

The Patient Experience Project Group has a specific role in supporting and advising the other workstreams in their patient engagement and involvement work.

Click here to download the strategy

Click here to find out how you can get involved with the work of the Alliance

Specific objectives of the Patient Experience Project Group are:

  • To champion parity between patient experience, clinical effectiveness and safety through the innovative use of information and digital technology. To test and recommend evidence-based new approaches of benefit across West Yorkshire and Harrogate.
  • To explore the opportunities for adopting the principle of placing patients at the heart of all service improvements, learning very specifically from the Breast Cancer Now service pledge and other examples of good practice

Read more about the Breast Cancer Now Service Pledge

Read more about our Cancer Alliance Service Pledge information and networking event in January 2018, where Beverley Forkes (right) shared her own very personal perspective as a breast cancer patient.

  • To review the results of the annual national Cancer Patient Experience Survey and to look at how unacceptable variations and inequalities can be reduced or eradicated. To influence, through the West Yorkshire and Harrogate Health and Care Partnership, the action plans in place at local level to make this happen.

To establish the ways in which patient feedback is collated and used across West Yorkshire and Harrogate, and to recommend ways in which this might be improved to support the reduction in unacceptable variations in care and treatment.

To provide expertise and guidance on elements of organisational structures and practice that contribute to positive patient experience.

Membership of the Patient Experience Project Group

  • Marina Bloj, Professor of Visual Impairment, University of Bradford (Chair)
  • Sean Duffy, Clinical Lead, West Yorkshire and Harrogate Cancer Alliance
  • Carol Ferguson, Macmillan Programme Director, West Yorkshire and Harrogate Cancer Alliance
  • Michaela Golodnitski, Service Delivery Manager, Scarborough and Ryedale Clinical Commissioning Group
  • Dawn Gulliford, Cancer Patient Service Manager, Airedale NHS Foundation Trust
  • John Hancock, Service Delivery Lead, North Yorkshire and Humber Clinical Network Team
  • Noreen Hawkshaw, Macmillan Lead Nurse for Cancer and End of Life Care, Harrogate and District NHS Foundation Trust
  • Sarah Hay, Governing Body Member, Harrogate and District NHS Foundation Trust
  • Krystina Kozlowska, Head of Patient Experience, Leeds Teaching Hospitals NHS Trust
  • Jill Long, Macmillan Engagement and Communications Officer, Yorkshire Cancer Patient Forum
  • Angela Millett, Quality Improvement Lead, West Yorkshire and Harrogate Cancer Alliance
  • Carol Nevison, Engagement and Volunteering Manager - North of England, Macmillan Cancer Support
  • Katrina Tyldsley, Group Manager Cancer Team, Mid Yorkshire Hospitals NHS Trust
  • Carolyn Walker, Head of Communication and Engagement, Leeds West Clinical Commissioning Group
  • Catherine Wood, Health Advocacy Manager, Breast Cancer Now