Living With and Beyond Cancer Work Programme

Around 88,500 people are currently living with or beyond a cancer diagnosis across our region. By the year 2030, it's expected that the number will rise by 48,000 to 117,000 people. Many people who have had a cancer diagnosis are older and may have other health conditions too.

The effects of cancer do not suddenly stop once cancer treatment is over and many people face long term difficulties such as worry and depression, concerns about money, family and relationship issues, as well as dealing with the physical effects of having cancer.

Our Cancer Alliance has secured £860,000 from the national Cancer Transformation Fund to support the Living With and Beyond Cancer Programme.

The aim of this programme of work is to ensure those living with and beyond a cancer diagnosis receive the help and support they need to live as full, healthy and active a life as possible. That care and support will vary from person to person and should be tailored to their own specific needs and those of their family and loved ones.

Much of this work will focus on improving access to the Recovery Package - an overall support and self-management package for people affected by cancer - physical activity as part of a healthy lifestyle; managing the consequences of treatment; information, financial and work support.

The Recovery Package is recognised in the national cancer plan, which includes a commitment to ensuring that every person with cancer has access to it by 2020, driving out unacceptable variations. The package acts as a means of ensuring effective communication between primary and secondary care as the patient moves along their journey from diagnosis, to treatment, to living with and beyond cancer in their local community.

The focus will be on complete Alliance-wide coverage in the four most common cancers (breast, colorectal, prostate and lung) as a minimum in the first phase. However, places making faster progress will be supported to expand and cover other less common cancer sites and support Alliance wide learning and sharing.

Click here for more information on the Recovery Package.

View the Macmillan Cancer Support video about the benefits of the Recovery Package

We are also supporting increased appropriate use of stratified follow-up for breast , prostate and colorectal cancer patients. This is a follow-up approach tailored to the specific needs of each patient. This can involve a reduction in the frequency of hospital-based follow-up, ensuring GPs have all the information they need to provide follow-up closer to the patient's home.

Increased, appropriate and consistent use of risk stratified follow-up also has the potential to free up clinical time at the earlier stages of the patient journey, providing teams with the additional capacity to deal with the growing number of patients being identified through early diagnosis, prevention and screening work.

Specific objectives of the Living With and Beyond Cancer Programme are:

The overall purpose of the LWBC programme is to support patients to lead as full and active a life as possible following a diagnosis of cancer.

  • Support implementation of the Recovery Package, promoting opportunities for supported self-management and accessing support closer to home. Click here to find out more about this work.
  • Assure delivery of risk stratified follow up care for all breast, prostate and colorectal cancer patients
  • Develop and share ‘how to’ guidance and commissioning/business case guidance to support system wide commissioning, spread and adoption of new care models for LWBC
  • Promote a more integrated approach to commissioning to deliver better outcomes and experience for patients
  • Identify gaps in support offered to patients, family members and carers, after a person following a diagnosis of incurable cancer and to identify how these needs can be better met
  • Review, monitor and support the Alliance LWBC Project Team and the progress of local plans

Helpful Information - Living With and Beyond Cancer

Click here to learn more about our supported self-management patient education bursary scheme.

Click here to read about the Next Steps Clinic - the personalised support co-ordination pilot in Bradford.

Click here for information you may find helpful if you are a patient or a person affected by cancer.

Click here for information you may find helpful if you are a professional and/or providing care or support for a person affected by cancer.

Click here to learn more about our work to support patients with a palliative diagnosis.

Shared Learning, Events and Conferences

Involving Patients

The involvement of patients is fundamental to the delivery of the Cancer Alliance work programme. Each of our project groups has been asked to produce a communications and engagement plan which supports their specific business objectives and aligns with the overarching Alliance communications and engagement strategy.

They will each be supported in this work by the Patient Experience Project Group, which is looking at the development of new and innovative approaches to ensure patient experience is a driver for service improvement and is also viewed on a par with clinical outcomes.

Click here to download the strategy

Click here to find out how you can get involved with the work of the Alliance